Update and Great News

Jay is continuing to improve each day. He is primarily using a walker to get around. He is sleeping well at night. He has some esophagus burn from the radiation and is having trouble swallowing. He has lost about 30 lbs. We hope he can increase his food intake over the weekend. His blood counts are staying low. H&H low, platelets low (17) and white counts low. He is getting platelets and blood today, platelets tomorrow followed by chemo. He has a head cold and will start on at home antibiotics. 

Overall he is tired but in good spirits. 

Now for the GREAT news. The latest sample of spinal fluid shows "a single cancer cell". The initial sample showed 300+ cells. Woohoo!! 

Another awesome day!

Jay had chemo today. So far not having any side effects or adverse reactions. He is feeling great. We had a fun family night visiting his tree and a meal not served at home. Kids also come up with a solution to staying warm when they didn't bring a jacket. 

Doing Great

Friday's procedure went great. Jay stayed over night for monitoring and was home Saturday morning. He is feeling good. Moving better and is 90% of the time only using a walker, no wheel chair since Saturday morning. He is not having any pain. His speech has cleared up significantly. Overall he is doing extremely well.

Last 2 radiation treatments this week. Chemo Thursday and then family and fun for Christmas. Keep those prayers coming!!  Lots of love from us to you. 

Making Progress

Each day Jay is getting stronger. He is still very weak and struggles to walk with a walker. The hope is his strength and mobility will start to return when they finish his radiation. He has also been on high dose steroids that are now being tapered which will help his leg strength to return. He is having the ommaya reservoir place in his head this Friday. Chemo will then be administered through the ommaya instead of with a spinal tap. His spinal pain has been greatly reduced with the chemo and radiation.

He is fatigued from the treatments but is fighting and moving forward. He will start physical therapy after Christmas to help him regain mobility and strength. He is eating great and sleeping really well at night!

We are looking forward to Christmas with our babies! A big thank you to everyone for all of the prayers. Keep them coming. 

Meds and Prayers are Working

Jay had a really rough week. Extreme weakness, slurred speech, and fatigue. Yesterday it was thought that the chemo and radiation were not working. We were presented with stopping treatment if he didn't have a noticeable improvement by today or Monday at the latest.

The prayers and meds are working!!!! Jay had a huge turn around last night. And this morning a noticeable improvement all due to the chemo he had yesterday. The doctor said to "forget" everything he told me yesterday and Jay will have treatment Monday. Once he finishes his radiation (12 more) the doctor will contact neuron to put the reservoir in Jays head to continue to administer the chemo.  Also the fluids specimen they got from the spinal tap yesterday shows a 2/3 reduction in the cells. 300+ to 107. 

PLEASE PLEASE keep praying. 

Update

Jay had a pretty rough week. Lots of nausea, pain and weakness. He is on at home fluids and steroids. His speech and balance are improving daily. His pain is managed and he is thinking more clearly. He still has difficulty sitting up due to pain in his low back. He walks slowly with the help of a walker but his legs are getting stronger. He was able to eat last night and this morning. We have dedicated a tree to him at the tinsel train downtown. Please check it out and find Jay or me on facebook!

The steroids cause elevation in his blood sugar...but I snuck in a little treat last night since he was able to eat. This road to recovery may be paved with donuts! But whatever it takes!!