Wednesday, December 23, 2015
Xeloda here we come!
I'm being switched to a pill Xeloda in 2016! No more Gemzar and Abraxain for now. The last treatment was a little hard on me.
Monday, December 14, 2015
Chemo again Round 11
Good first day after a chemo break. Hopefully just 5 more times before I switch to the Xeloda pill
Thursday, December 3, 2015
More good news!
I received my PET scan results today...NO evidence of cancer! From here I get 6 more treatments of chemo (gemzar and abraxain) over 12 weeks. After that I'll be put on a pill. My oncologist calls it a miracle. Praise God!!!
Tuesday, November 24, 2015
Great news!
I received the test results from a urine test I took recently. It showed no signs of KRAS which means no signs of cancer! I have a PET scan next week. Depending on the results of all these tests I may receive two more rounds of gemzar and abraxane followed by a pill every other week called Xeloda. I'm currently No Evidence of Disease (NED)! Praise God!
Friday, November 6, 2015
Home again!
Jay was discharged today. He is doing well. Hopefully he will have the opportunity for a chemo break. Lord knows he needs one. We will know more when he goes to the doctor Monday.
Wednesday, November 4, 2015
Hospital again...
Jay was hospitalized again for low blood counts. They are giving blood and platelets. He had a CT and we will get the results Wednesday morning. Hopefully there isn't a bleed. Seems he can't catch a break on the new chemo.
We appreciate the prayers.
Thursday, October 29, 2015
Chemo today-Round 10
Sorry we didn't update the blog during the last chemo, which was October 12(round 9). Jay did great after that treatment. No noticeable bleed. He had normal chemo related symptoms...tired, low appetite, etc. But overall he did awesome and most importantly he was not hospitalized.
He is having chemo today(round 10). His counts are good. His energy level is good. Hopefully he will recovery quickly.
His CA 19-9 is stable in the normal range. Thank you all for the continued prayers.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
May 2015 CA 19-9 = 23
May 2015 CA 19-9 = 26
May 2015 CA 19-9 = 35
June = started new chemo drugs
July 2015 CA19-9 = 17
August 2015 CA 19-9 = 28
September 2015 CA19-9 = 14
October 2015 CA19-9 = 11
October 2015 CA 19-9 = 12
Friday, October 9, 2015
CA 19-9 Update- woohoo!
Most importantly his tumor market is .... ready... 11...ELEVEN!!!
Just to give you an idea of how great that is, my tumor market is 8. And I've never had cancer.
11
11
11
I can't stop saying it! Thank the good Lord for all that he has and continues to do for us. And thank you to everyone who prayers for Jay and our family.
And THANK YOU Aunt Dana for keeping the kiddos this afternoon so we can have a little time to celebrate...ELEVEN!!
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
May 2015 CA 19-9 = 23
May 2015 CA 19-9 = 26
May 2015 CA 19-9 = 35
June = started new chemo drugs
July 2015 CA19-9 = 17
August 2015 CA 19-9 = 28
September 2015 CA19-9 = 14
October 2015 CA19-9 = 11
Friday, October 2, 2015
Headed home
Jay made it to a room late last night. He was glad to spend a night outside of ICU. Dr rounded this morning and said Jay gets to come home.
Hopefully he will be home this afternoon.
Wednesday, September 30, 2015
Looking Good
They scoped Jay's stomach last night and didn't find any significant bleeds. They did band a few small vericies in his esophagus. The stomach vericies which were the primary concern are sealed.
He will be in ICU until tomorrow and hopefully progress to a regular room tomorrow afternoon and fingers crossed....HOME Friday!!
He is sitting up drinking water and sipping on broth. His color is good. Said he rested last night and is feeling much better today.
Tuesday, September 29, 2015
Staying in ICU
Jay starting bleeding again yesterday. He will be in ICU for a while longer. They are working on a plan to determine where the bleed is and how to fix it.
Thank you all for the prayers!
Monday, September 28, 2015
Still in ICU
Jay is staying in ICU one more night waiting for the bleed to clear and to make sure his blood levels continue to trend up. So far so good.
He is tired. Not getting much sleep. His color is good and he is feeling okay.
Sunday, September 27, 2015
Successful procedure
Jays precedure went very well. Hopefully this is a longer lasting fix for the bleeding. He is in ICU but should be moved to a regular room today.
He feels ok. Tired and hungry but in good spirits.
Saturday, September 26, 2015
Back in the hospital
Well, unfortunately Jay is back in the hospital. He had chemo Wednesday and had normal chemo related side effects. Thursday he started feeling really weak and by Friday morning he was very sick.
His blood counts had dropped. He was taken to the hospital. They scoped his stomach and there is still a small bleed. Nothing as significant as last time. But enough to warrant an additional procedure.
He is having the procedure today. Hopefully they will be able to stop the bleeding.
While waiting I decided to "peanutize" Jay!
Thursday, September 24, 2015
Thursday, September 17, 2015
Jay is home
Just wanted to share that Jay came home yesterday. He is doing great. He went in for blood work this morning and he is... As we know... A rock star! Blood counts doing great. He feels better than he has in months. According to the doctor " guess we plugged the leak".
Sorry for no update yesterday. Dad came home from the hospital early this morning and things were hectic yesterday.
Thank you all for the support, visits, word of encouragement and prayers.
Taking a minute to rejoice in the day the Lord made.
Tuesday, September 15, 2015
Update
The endoscopy shows additional veracies. They are going to tweak the closures of the initial bleed to further reduce the veracies. Jay is waiting now to be taken to radiology. He is in good spirits and resting. He is schedule to be discharged tomorrow.
On another note, my grandfather passed away this morning. Please pray for peace and comfort for my family. He was 85, and enjoyed a long life of good health.
My dad on the other hand has been under going treatment for cancer for the last 2 years. He is in the ER and will be admitted. Pray for his comfort and recover.
This is a difficult week for our family. We rejoice in the Lord and the Blessing that we have.
Monday, September 14, 2015
Update
Jay is doing great. Having upper GI scope this morning to make sure the bleeding has stopped, and then hopefully home tomorrow.
He was put on solid foods last night. He says he feels good and is ready to be home.
Saturday, September 12, 2015
Update
Jay is out of ICU and in a regular room. He is still passing blood and his counts are dropping a little. They will reevaluate at 2pm and decide if they need to transfuse blood. Overall he is feeling good. Resting some...watching football!
Friday, September 11, 2015
Update and CA 19-9
Jay is feeling really good this morning. They started him on a liquid diet. He did get a little sick after eating. But is resting and doing well.
He blood counts are trending down so they gave him one unit of blood and will give him another unit at some point today.
He is leaving ICU and going to a regular room. We will probably spend the weekend at the hospital and hopefully get the bleeding under control.
GREAT NEWS! His CA 19-9 has dropped to 14... The lowest it has ever been.
Thank you all for the prayers.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
May 2015 CA 19-9 = 23
May 2015 CA 19-9 = 26
May 2015 CA 19-9 = 35
June = started new chemo drugs
July 2015 CA19-9 = 17
August 2015 CA 19-9 = 28
September 2015 CA19-9 = 14
Thursday, September 10, 2015
Recovering Well
Jay is doing great. Hopefully they got the bleed. He rested on and off last night. His blood counts came up drastically after the surgery and seem to be stable. He is in ICU and will hopefully be moved to a regular room for additional monitoring.
Thank you all for the prayers! Keep them coming.
Wednesday, September 9, 2015
Update: A set back...prayers needed.
Since starting the new treatment in July Jay has been anemic. He has been hospitalized a few times and received numerous units of blood. Today He passed out at the cancer center. He then began to throw up blood. It became very apparent that his stomach bleed has returned. He is having a procedure to hopefully stop the bleed. It will be several hours before the procedure is done.
Please keep Jay and our family in your prayers.
Wednesday, September 2, 2015
7th Round of chemo
Another Round of chemo today. I'm low on iron so I get a bag of that as well. It took a bone marrow biopsy to figure it out.
Monday, August 17, 2015
Getting blood today
I'm getting 2 units of blood today. Low red blood count. Hope to be home by midnight.
Monday, August 10, 2015
Wednesday, July 29, 2015
Wednesday, July 15, 2015
Thursday, July 9, 2015
Another round of chemo today
I had my 4th treatment with gemzar and abraxane today. I feel good overall. No new CA19-9 or CT / PET results. Looking forward to the weekend.
Thursday, June 25, 2015
REMISSION... Complete remission!!
Jay had a pet scan this week. He has not had one since December 2013 because chemo shows up as cancer on a pet scan. And they didn't want to stop treatment long enough to let chemo get out of his system. But since he was hospitalized they had to wait 3 weeks which is long enough to allow for a PET Scan.
PET Scan results indicate that Jay is in complete remission. No sign of cancer. Just scar tissue from where tumor was. PRAISE GOD!! The Oncologist had the results read by two Radiologist and is having a third specialist read the results as well.
Jay will still have low dose chemo every other week... for now... to make sure micro cells don't grow. But no sign of disease and full remission.
Tumor marker also went down to 18. The lowest yet!!
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
May 2015 CA 19-9 = 23
May 2015 CA 19-9 = 26
May 2015 CA 19-9 = 35
June 2015 CA 19-9 = 18 (new treatment)
Thursday, June 11, 2015
Released from the hospital
I got out of the hospital today. Thank you for all the thoughts and prayers. It feels good to be home!
Sunday, June 7, 2015
Minor set back
His new chemo drugs have caused a minor set back. Jay was pretty tired during the first week of the new drugs (last week of May). He recovered slightly over the weekend. The blood work he received June 2 indicated the need for additional platelet and white count booster shots prior to and during the second week of treatment.
He began his second week of chemo Wednesday June 3 and had slight nausea with fatigue that night. Thursday he was feverish on and off and they called in antibiotics and schedule an appointment with the nurse practitioner for Friday morning. He was very sick with a high temp and vomiting Thursday night. Friday morning he was very weak, easily winded and required a wheel chair. He passed out briefly in the blood lab. His blood work showed a drastic drop in his platelets and white counts. He was admitted to the hospital.
Over the past three days he has on and off fever, chills, cough, nausea, a rash, drop in blood pressure, dehydration, and a building of fluid. The care givers and doctors have been attentive and addressing each symptom as they arise. He is doing better today.
He has received 4 units of blood and one unit of platlets. His counts have not rebounded very well. He will probably be in the hospital a few more days.
Below is what his tumor markers looked like to warrant changing treatments.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
May 2015 CA 19-9 = 23
May 2015 CA 19-9 = 26
May 2015 CA 19-9 = 35
We appreciate all thoughts and prayers.
Tuesday, May 26, 2015
Switching treatment
I'll be starting a new treatment regimen tommorow. Gemzar and Abraxain. My CA19-9 has crept up from a low of 19 to 35 now. 35 to 37 is the max for normal. My CT scan looks stable. This treatment will be 3 weeks in a row followed by 2 off weeks. Overall they say it's easier. I will lose all my hair. No big deal. The next phase of the journey begins!
But tonight, thanks to my mother in law who is keeping the twins and my father in law who lets us hang out at his lake house, I'm going to sit here with my wife and enjoy the sunset!
Tuesday, May 5, 2015
Round 27
Started round 27. Latest CA19-9 is at 26. Took a new ctDNA test today which monitors my overall tumor burden. Starting glucophage. Glucophage may help fight the cancer.
Friday, May 1, 2015
Friday, April 24, 2015
CA19-9 & genetic testing results
Latest CA19-9 is 23.1. Was 19.7. No reason to be alarmed yet. No gene abnormalities have been detected for me out of 17 tested. I start chemo again on 5 May.
Tuesday, April 14, 2015
Round 26
Jays is starting his 26th round of chemo today. His blood work looks great and he is doing exceptionally well. We will get through this week, recover and start preparing for a trip to New Orleans for Jazzfest! Jazz fest will mark 18 months since diagnosis. And looking forward to summer at the lake. 
Sunday, April 5, 2015
Latest CA19-9
I'm at 19.7 now. Seems to be staying around 20 now.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
April 2015 CA 19-9 = 19.7
Wednesday, March 25, 2015
Thursday, March 12, 2015
CA 19-9 update
Jay is feeling great his week. Recovered very quickly from last weeks chemo. His tumor market went up very slightly. But still hovering around the 21 mark.
We are headed to New Orleans for our anniversary.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21.7
February 2015 CA 19-9 = 20.6
March 2015 CA 19-9 = 21.2
Tuesday, March 3, 2015
CT results
The tumor in my pancreas has decreased in size from a 2.5 x 1.7 to a 2.0 x 1.4cm in 2 months. Great News!
Friday, February 20, 2015
CA 19-9 Update
Great news, Jays tumor marker continues to go down! He has been in the normal range for the past three tests.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21
February 2015 CA 19-9 = 20
Tuesday, February 10, 2015
Ice cream
For some reason I can eat ice cream on oxaliplatinum. My doctor can not explain it. Just a random fact in my journey. Praise God!
Wednesday, January 28, 2015
Latest CA 19-9
Great news! Jays tumor marker is down to 21. Going to keep chipping away at it!!
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
February 2015 CA 19-9 = 21
Tuesday, January 20, 2015
Round 22
Started another round of chemo today. Nothing new medically. Still working towards a goal of less frequent chemo in 2015.
Friday, January 9, 2015
Bio banking
My first bio banking of my blood took place today. Hopefully taylored medicine for pancreatic cancer will happen someday.
Latest CA19-9
I'm at 26.6 as of 29 December! Below 35 is normal. The plan still is to continue with chemo for now. Next round is 20 January.
December 2013 CA 19-9 = 202,000
January 2014 CA 19-9 =109,000
February 2014 CA 19-9 = 25,000
March 2014 CA 19-9 = 18,000
April 2014 CA 19-9 = 13,000
May 2014 CA 19-9= 5,500
June 2014 CA 19-9=1,964
August 2014 CA 19-9 = 481
September 2014 CA 19-9 = 211
October 2014 CA 19-9 = 111
November 2014 CA19-9 = 57
December 2014 CA 19-9 = 40
January 2015 CA19-9 = 26
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